So as I sit here in our personal section (or at least it seems that way) of the waiting area of Boston Children's Hospital (again), I'm reminded of the first time I sat here. It was exactly 5 years ago to the day and we were waiting anxiously to hear from the doctor about how the heart surgery had gone. We had gotten the news about 48 hours prior (as we were about to take him home for the third time) that Douglas's aorta narrowing had gotten worse. The two previous attempts to take him home were thwarted by last minute spikes in blood pressure (In hindsight, probably a good thing). It stemmed from an improper closing of the PDA valve after birth. This caused a narrowing in his aorta making it extremely hard for the blood to flow. Because he was so small, probably only about 5 pounds or so at this point, his heart was working overtime just to pump the blood normally but was working double overtime because of the narrowing. This was causing his blood pressure to spike even more. They told us if they did not operate to remove the blockage in 72 hours, his heart would literally explode.
Now you would think that news like this would be so devastating to new parents that they would break down uncontrollably and cry. But after the last 10 weeks of what we and the boys had been through, this was pretty much par for the course (and should have been a sign of things to come). Long story short, the procedure went flawlessly, his blood pressure is stellar and the annual EKG's have all been fun actually since he gets to play with all the stickers on his body.
But I've come to the realization that the old saying is true: That which doesn't kill you only makes you stronger. Because this kid is the strongest 5 year old I know and if he can get through all of this in his first 5+ years of life, he can get through anything that life will throw at him. I love him more than he'll ever know.